Recorded on January 20, this informational video discusses the upcoming Voice of the Patient Forum (or patient-focused drug development meeting) for facioscapulohumeral muscular dystrophy (FSHD) that is being organized by the FSHD Society for April 21. James Valentine explains the role of the patient’s voice in the FDA‘s consideration of drug approval applications. June Kinoshita explains how to register to participate. We encourage every patient and caregiver to be involved. For more information, visit our event landing page.
Posted on: Jan 24, 2020