Organization: FSHD Italia aps
City and country of residence: Rome
Education: I studied to become a primary school teacher but then my passion for travel and languages led me to work in a travel agency where I was for several years, then music led me to work at a music production company. I have a predisposition to feel useful towards others and try to make my contribution where possible. I don't have particular hobbies and one quality can be to collaborate in a team. I like having a chat with friends over good food and a glass of wine. I hate arrogance, rudeness and places I can't go up because of architectural barriers.
Profession: Currently and now it's been more than ten years, I work in a doctor's office and I'm the secretary of the association fshd italia aps
Hobbies and skills: I don't have particular hobbies and probably one of my skills is that I feel comfortable working in a team that pursues a common goal for the benefit of many
Relationship to FSHD (patient, family member, etc.): patient