Fabiola Maria Bertinotti
Organization: UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
City and country of residence: Monza, ITALY
Education: I like Foreign Languages, Marketing & Communications, Philosophy and Theology.
Profession: Currently student at University
Hobbies and skills: passionate about patient advocacy, interior design, bioethics, defense of consumers' rights.
Relationship to FSHD (patient, family member, etc.): my son is affected.