Maria Giovanna Tortora
Organization: UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare
City and country of residence: Albano Laziale, ITALY
Education: I did classical studies. I like Marketing & Social Media Communications
Profession: Currently volunteer at UILDM
Hobbies and skills: passioned with patient advocacy, reading, web writing
Relationship to FSHD (patient, family member, etc.): I am a patient