Organization: Spierziekten Nederland
City and country of residence: Baarn - Nederland
Education: I did bachelor nursing
Profession: I am a volunteer at the patient association next to my work as a nurse
Hobbies and skills: I love to do sports (crossfit), I grow my own veggies and love to read
Relationship to FSHD (patient, family member, etc.): My father and myself we both have FSHD type 2.