Organization: FSHD UK
City and country of residence: London, UK
Education: International Relations/French – I loved studying everything, except Physics. Now I wish I had paid attention to Physics.
Profession: IT Professional - Project Management
Hobbies and skills: I used to play tennis (pre FSHD)- now I watch it! Learn languages, Travel, Theatre, Cinema, Play Bridge
Relationship to FSHD (patient, family member, etc.): I have FSHD