Sheila Hawkins
Organization: FSHD Europe
City and country of residence: Leicester in the UK
Education: I originally studied Sociology and Social Administration, spent a lot of time working on the development of vocational (work-based) qualifications and have just completed a Diploma in Fashion Design
Profession: a varied career in health and social care, with an emphasis on Staff Development, Workforce Planning and Project Management
Hobbies and skills: I volunteer at a Family Contact Centre, supporting separating families so that the children maintain a relationship with both parents.
Relationship to FSHD (patient, family member, etc.): I was diagnosed with FSHD in 1989