Sylvie Genet
Organization: AFM-Téléthon France FSHD patient group and FSHD Europe
City and country of residence: Brest - France
Profession: I was engineer then teacher, I'm retired now (but very active in patients advocacy groups)
Hobbies and skills: I like music, books, walk (roll) with my husband, contribute to Wikipedia
Relationship to FSHD (patient, family member, etc.): I'm a patient, as my mother was