2026 FSHD Connect Conference

The Future in Motion: Empowerment, Connection, and Care for Life with FSHD 

Uniting patients, families, and experts to equip, connect and prepare for what lies ahead.

June 26–28, 2026
Hyatt Regency O’Hare Chicago

Join us in Rosemont, IL (the Greater Chicago area) for the 2026 FSHD Connect Conference—our biennial global gathering dedicated to education, connection, and empowerment for the FSHD community. Each year, individuals and families from around the world come together at Connect to build meaningful relationships, find support along every stage of the FSHD journey, and gain the latest updates in research, care, and advocacy. This hybrid event unites the community with leading clinicians, researchers, and advocates to share knowledge, spark hope, and power the path forward—together. 

Held just minutes from downtown Chicago, Rosemont offers the perfect mix of convenience and fun. Attendees can enjoy world-class dining, iconic architecture, lakefront views, museums, live music, and shopping, all while reconnecting with the FSHD community between sessions. Whether you join us in person or virtually, the 2026 FSHD Connect Conference is designed to leave you feeling informed, supported, and energized by the strength of our global community. 

More information including Companion and Scholarship applications can be found in the Connect Conference webpage >>