FSHD University Webinar: Update on The MOVE Peds Study

Presenter: Dr. Jeff Statland, MD

Join us for a webinar update on the MOVE Peds study—Motor Outcomes to Validate Evaluations in Pediatric FSHD—a groundbreaking natural history research initiative designed to understand how FSHD progresses in children and young people. Dr. Statland will provide an update on the study’s progress, explain what participation involves, and discuss how the study validates which outcome measures are most meaningful and reliable for tracking disease progression in pediatric FSHD, ensuring that future clinical trials have the right tools to accurately measure treatment effectiveness. He’ll also share why this research is critical for shaping how future treatments are tested and helping doctors provide better, age-appropriate care for children with FSHD. If you have a child with FSHD and are considering participation, you’ll learn what to expect during study visits, how your family’s involvement directly advances research, and the impact your contribution makes to developing better treatments and guidelines for the pediatric FSHD community.