早发型家长圆桌会议

 活动载入中
  • 此活动已过期。

1 月 17, 2023 @ 7:00 下午 - 下午 8:00

Event Series (See All)

Tuesday, January 17th

晚上 8:00 ET | 晚上 7:00 CT | 晚上 6:00 MT | 下午 5:00 PT

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

我们非常期待您的想法与参与。请加入我们,带来您的想法、问题、解答以及各种技巧与心得。.

  • Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2022, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org

Ally Roets 与 Sam Ray
Early-Onset Chapter Directors

Learn more about the Early-Onset FSHD Chapter: FSHDSociety.org/Early-onset-chapter

 

注册按钮

明细:

地点