
欧洲中部时间晚上 18:00 | 英国时间晚上 17:00 | 美国东部时间中午 12:00 | 中部时间上午 11:00 | 山地时间上午 10:00 | 太平洋时间上午 9:00
Join us for our second session of the month, “Why Exercise?” led by Frank Hanley. In this session, Frank will share the ins and outs of his struggle with FSHD and his wellness journey. He will lead an in-depth discussion of why a fitness and wellness program is important for FSHD patients.
Frank Hanley is a fitness and wellness advocate and an FSHD Society Volunteer Leader. He hosts the “FSHD Wellness Channel” on Facebook. He organized and launched the FSHD Society South Carolina Chapter and served as Chapter Director. Frank is a martial artist, author, and teacher of Kung Fu, Taijiquan and multiple Qigong styles and practices.
对于患有面肩肱型肌营养不良症(FSHD)且对锻炼和健身感兴趣的人士,我们于每月第二和第四个星期四美国东部时间中午 12:00 举行聚会。请穿好适合锻炼的服装,并备好您所需的任何安全和辅助设备。并非每种锻炼都适合或安全于每个人,因此请您做出最佳判断并咨询您的医疗保健提供者。.
Please come prepared with a stable chair or stool (back of chair is optional). You can also choose to bring light weights ranging from 1lb to 5lb.