照顾者时刻：协助自理

美国东部时间晚上 8:00 – 9:00 | 中部时间晚上 7:00 – 8:00 | 山地时间晚上 6:00 – 7:00 | 太平洋时间下午 5:00 – 6:00

Calling all care partners to join us this month for a conversation about helping your loved one with self-care. This can be delicate ground as your partner wants to preserve as much independence as possible while adapting to losses in physical functions. Share your experiences and learn from others who have walked this path. Your input is vital in helping us develop our monthly meeting into a valuable resource for you.

本次月度会议面向照顾患有面肩肱型肌营养不良症（FSHD）亲友的照料者。这场线上会议是一个安全且充满支持的空间，供大家与其他护理伙伴分享彼此的经验、挑战和实用的建议（我们更倾向于使用“护理伙伴”这一称呼，而不是“照料者”，因为关怀是一种伙伴关系，而非单向付出）。.

请遵守我们关于本次会议仅限护理伙伴参加的规定。由于我们不希望公开张贴 Zoom 会议链接（以防“Zoom 轰炸者”），请点击下方按钮进行注册。.