博客 - FSHD 学会

by Beth Johnston Meet Rick Whitehead from Knoxville, Tennessee! Rick has volunteered with the FSHD Society in several different capacities, and most recently is serving as the Facilitator for our […]

归档：前列腺增生症患者的生活

更多信息

追寻正义与蝴蝶：埃德·巴罗卡斯回首充满使命感、幽默与希望的人生

发布日期 2026年6月22日6/22/26

Ed Barocas passed away on Friday September 11, 2026. You can read his full obituary written by James J. Devine; an excerpt is included below. “Barocas did not defeat muscular […]

归档：前列腺增生症患者的生活

更多信息

科琳的故事：世界面肩肱型肌营养不良症日故事

发布日期 2026年6月18日6/18/26

Looking back, the signs were there long before I had a diagnosis. As a child, I had a curved posture, winging shoulder blades, high arches, and slept with my eyes […]

归档：前列腺增生症患者的生活

更多信息