Welcome to the Alberta Chapter
FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.
The Alberta chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
我们为您提供支持、共享当地资源,并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症,还是已经与前列腺增生症共同生活了多年,我们都将为您提供支持,帮助您走好人生的每一步。.
加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.
认识我们的团队
-
Karen Camarta
Karen Camarta is excited to be co-directing the Alberta Chapter with her sister Jennie. With FSHD in her family, Karen started noticing signs of the disease in her twenties, though she has been fortunate to experience only mild symptoms so far. She is passionate about connecting with others affected by FSHD and working to spread understanding within her local community.
Karen lives in Calgary with her amazing husband and daughter. She loves to travel, explore nature, and discover new cultures around the world. Karen is proud to support the Alberta Chapter and the FSHD community as they continue to grow and strengthen their connections.
Contact Karen & Jennie directly or visit the Alberta Facebook page.
-
Jennie Camarta
Jennie Camarta is proud to co-direct the Alberta Chapter alongside her sister Karen. Diagnosed with FSHD in her early twenties, Jennie has always known she had the condition. Despite the challenges of FSHD, she leads an active lifestyle, enjoying time in the Rocky Mountains, traveling, and spending time with her nieces and nephews.
Jennie and her husband, Nick, have been married for over 15 years and live in Calgary. When she’s not planning her next adventure, Jennie works as a Registered Nurse caring for veterans. She is dedicated to supporting her local FSHD community and looks forward to building stronger connections with others affected by the disease.
Contact Karen & Jennie directly or visit the Alberta Facebook page.
Volunteer with the Chapter
While Karen & Jennie are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
联系 Beth Johnston,志愿者领导力主管 了解如何发挥影响并参与其中。.