Welcome to the Bay Area Chapter

The Bay Area chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

点击下方按钮，了解我们如何为您的FSHD抗病之旅提供支持。.

加入您所在地的分会

认识我们的团队

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  山姆-费尔德曼

  Sam Feldman was diagnosed with FSHD1 in 2019 at age 33, though his symptoms (and occasional searches for answers) began in childhood. He has recently become more involved with the FSHD Society and is encouraged to find a sense of community that comes with support and connection to people who understand.

  Sam focuses on staying active when possible and adapting as his condition changes. He’s grateful to meet others navigating similar challenges and hopes to help build a welcoming, informed, supportive space for people living with FSHD and those who care for them.

  Outside of FSHD advocacy, Sam works in public service as the Manager of Budget for the East Bay Municipal Utility District and is active in his local community in Emeryville. He brings the same dedication to the FSHD community: showing up, staying hopeful, and reminding others that none of us go through this alone.

  Contact Sam directly or visit the Bay Area Facebook page.