Welcome to the British Columbia Chapter

The British Columbia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

点击下方按钮，了解我们如何为您的FSHD抗病之旅提供支持。.

加入您所在地的分会

认识我们的团队

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  Cheryl Hooge

  Cheryl is proud to co-direct the FSHD BC Chapter. Her daughter was diagnosed with a spontaneous case of FSHD at the age of 16, and this experience sparked Cheryl’s dedication to learning as much as possible about the disease. She stays informed by reading literature and connecting with others affected by FSHD to share insights and support.

  Cheryl believes the FSHD community is an invaluable resource for patients, families, and caregivers, and her passion for building connections led her to help strengthen the local FSHD community in British Columbia. As treatments are being developed, Cheryl is focused on ensuring access to clinical trial sites, hoping to bring one to the area in the future. She is committed to supporting those affected by FSHD and continuing to grow the community.

  Contact Cheryl directly 或访问 British Columbia Facebook page.