Chicagoland Chapter

连接。支持。信息。加强。.

Welcome to the Chicagoland Chapter

The Chicagoland chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Mary Mauch & Suzy Kosten

    Mary Mauch & Suzy Kosten

    Mary Mauch and Suzanne “Suzy” Kosten are the co-directors of the Chicagoland Chapter. They are deeply committed to leading the chapter and supporting their local community.

    Mary was diagnosed with FSHD in 2018, and both her mother and brother also have FSHD Type 1. Suzy’s family has also been impacted, with one of her five children living with the condition.

    Together, Mary and Suzy are dedicated to building a strong, supportive community. They look forward to providing resources, fostering connections, and helping others navigate the challenges of living with FSHD.

    Contact Mary & Suzy directly 或 visit the Chicagoland Facebook page.

Volunteer with the Chapter

While Mary & Suzy are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming Chicagoland Chapter Events

活动

今天