Colorado/New Mexico Chapter

连接。支持。信息。加强。.

Welcome to the Colorado/New Mexico Chapter

The Colorado/New Mexico chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Kurt Spiegel

    Kurt Spiegel

    Kurt was diagnosed with FSHD at the age of 53 after experiencing muscle weakness and atrophy that led to a search for answers. As someone who had lived an active lifestyle as an endurance athlete, the progression of the disease deeply affected all aspects of his physical activities.

    Now unable to work, Kurt is focused on partnering with the FSHD Society to provide education, share insights, and offer support to FSHD patients and caregivers. His goal is to help others live the best life possible despite the challenges of FSHD.

    Contact Kurt directly or visit the Colorado/New Mexico Facebook page.

Volunteer with the Chapter

While Kurt is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming Colorado/New Mexico Chapter Events

活动

今天