Welcome to the Greater Philadelphia Chapter

The Greater Philadelphia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

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  Bill MacLean

  Bill has been a member of the FSHD Society for over a decade and understands how valuable it is to have a local community that shares experiences, offers strategies to manage FSHD, and supports research to improve the lives of those affected. Facing this disease alone can be challenging, but being part of a community that understands makes a world of difference.

  Bill’s wife has been a constant source of support throughout his journey with FSHD. Together, they’ve faced many challenges, and her encouragement and belief in the importance of the FSHD Society have been vital to him. With her support, Bill has been able to stay connected to the community and continue his efforts to raise awareness and provide support for others affected by FSHD.

  Contact Bill directly or visit the Greater Philadelphia Facebook page.