Welcome to the Michigan Chapter

The Michigan chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

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  Andrea (Dre) Vanbeek & Alissa Lowman

  Andrea (Dre) Vanbeek and her sister, Alissa Lowman, are the Co-Chapter Directors for the Michigan chapter. In September 2021, Dre’s son, Crew, was diagnosed with FSHD Type I at the age of 12. This diagnosis led Dre and Alissa to dive into research and find ways to support Crew and others facing the same challenges. Their goal is to connect families with resources, information, and a community of support, offering hope in a time of uncertainty.

  Dre lives in West Michigan, where she works as a registered nurse and is a proud mom of four children, including Crew. Alissa lives in the Detroit area, where she recently retired from teaching and has three children. Both Dre and Alissa are passionate about helping families navigate the journey of FSHD and raising awareness in their community.

  Contact Dre & Alissa directly or visit the Michigan Facebook page.