Minnesota Chapter

连接。支持。信息。加强。.

Welcome to the Minnesota Chapter

The Minnesota chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Jacob Wise

    Jacob Wise

    Jacob Wise lives in Edina, MN, with his wife and three children. He was diagnosed with FSHD in 2001 at the age of 23. As his condition progressed, Jacob felt a strong desire to give back to the FSHD community. When the opportunity arose to help create a Minnesota Chapter, he was eager to contribute and use his experience to support others.

    Jacob is excited to connect with others affected by FSHD, share resources, and build a local support network. He is dedicated to advancing treatments for FSHD by fostering a strong, supportive community.

    Contact Jacob directly or visit the Minnesota Facebook page.

     

Volunteer with the Chapter

While Jacob is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming Minnesota Chapter Events

活动

今天