NE Florida Chapter

连接。支持。信息。加强。.

Welcome to the NE Florida Chapter

The Northeast Florida chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Christi Thissen

    Christi Thissen

    Christi Thissen is proud to be part of the local Northeast Florida FSHD chapter and is passionate about bringing people together. Diagnosed with FSHD in 1998 at the age of 19, she understands the challenges that come with the condition. Christi owns an IT Managed Services company in Jacksonville, which she runs with her big brother, who also has FSHD.

    Through the chapter, Christi helps create a space where people affected by FSHD can share stories, exchange resources, and support one another. She believes that building a strong local community helps people navigate their journey with FSHD and allows them to connect with others who are facing similar challenges.

    Contact Christi directly or visit the Northeast Florida Facebook page.

Volunteer with the Chapter

While Christi is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming NE Florida Chapter Events

活动

今天