New England Chapter

连接。支持。信息。加强。.

Welcome to the New England Chapter

The New England chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Kathy Senecal

    Kathy Senecal

    In 2017, Kathy Senecal started the Connecticut Connections meetings, which later became the Connecticut Chapter and is now part of the New England Chapter. The group originally met in person once a month but switched to Zoom to reach more people.

    By sharing support, ideas, and personal experiences, the group has built a strong sense of community. This connection helps everyone feel united as they navigate the challenges of FSHD together, while also supporting the FSHD Society’s efforts to advance treatments and improve the lives of those affected by the condition.

    Contact Kathy directly or visit the New England Facebook page.

Volunteer with the Chapter

While Kathy is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming New England Chapter Events

活动

今天