New York City Chapter

连接。支持。信息。加强。.

Welcome to the New York City Chapter

The New York City chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源,并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症,还是已经与前列腺增生症共同生活了多年,我们都将为您提供支持,帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • David Rubin

    David Rubin

    David Rubin is proud to lead the New York Chapter of the FSHD Society. Diagnosed with FSHD at the age of 49, he has experienced gradual muscle loss over the years but remains committed to raising awareness and supporting others affected by the condition.

    After spending 40 years in business advisory leadership roles, David recently retired and now focuses on giving back to the FSHD community. He is an active board member of the FSHD Society, where he works to connect families and support ongoing research. In his free time, he explores entrepreneurial opportunities and enjoys being a grandfather to his growing family.

    Contact David directly or visit the New York City Facebook page.

Volunteer with the Chapter

While David is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston,志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming New York City Chapter Events