The Carolinas Walk & Roll to Cure FSHD 2026
Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page […]
Now available. Read our 2025 Impact Report
The North Carolina chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
我们为您提供支持、共享当地资源,并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症,还是已经与前列腺增生症共同生活了多年,我们都将为您提供支持,帮助您走好人生的每一步。.
Click the button below to learn how we can support you on your FSHD journey.
Join Your Local Chapter
Michael King is from Charlotte, North Carolina, and was diagnosed with FSHD in early 2024. After his diagnosis, he reached out to the FSHD Society for support and is grateful for their guidance in navigating the disease. Connecting with others in the FSHD community has become an important part of his journey and has helped him cope with the challenges of the condition.
As Chapter Director, Michael is eager to support and make a positive impact on other FSHD patients, their families, and friends. He feels fortunate for the opportunity to serve in this role and looks forward to building connections within the FSHD community.
Contact Michael directly or visit the North Carolina Facebook page.
While Michael is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
联系 Beth Johnston,志愿者领导力主管 了解如何发挥影响并参与其中。.
Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page […]