Sacramento Chapter

连接。支持。信息。加强。.

Welcome to the Sacramento Chapter

The Sacramento chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Paul Miller

    Paul Miller

    At the age of 16, Paul was diagnosed with FSHD, and he is now 62. Throughout his life, he has maintained a positive outlook and found many ways to adapt to the condition. While he now uses a power wheelchair for outdoor activities and a wheeled walker inside, he remains active and independent.

    Paul’s current passion is photography, which allows him to express his creativity and capture the beauty around him. Despite the challenges of FSHD, he finds joy in his hobby and uses it as a way to connect with others and share his unique perspective.

    Contact Paul directly or visit the Sacramento Facebook page.

Volunteer with the Chapter

While Paul is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston，志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming Sacramento Chapter Events

活动

今天