Welcome to the San Diego Chapter

The San Diego chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

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  Amy Bekier

  Amy Bekier’s journey with FSHD has inspired her to advocate for others facing similar challenges. After FSHD began affecting her and her family, she adopted the motto, “I can no longer sit and cope but must get active and hope.” When Amy moved to San Diego, she became both a national Board member and the San Diego Chapter Director of the FSHD Society, where she helps support others living with the condition.

  Before focusing on FSHD advocacy, Amy had a successful career as an insurance agent and Chartered Life Underwriter. She is also an award-winning artist who works with soft pastels and oil. When she could no longer use her right arm, Amy taught herself to paint with her left hand. In addition to her artistic pursuits, Amy enjoys modified recreational golf and is a proud member of the Bernardo Heights Country Club.

  Contact Amy directly or visit the San Diego Facebook page.