Welcome to the St. Louis Chapter

The St. Louis chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源，并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症，还是已经与前列腺增生症共同生活了多年，我们都将为您提供支持，帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

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  Marsha Sverdrup

  Marsha and her family were introduced to the world of FSH when her oldest child, who was 10 at the time, was diagnosed with the infantile form of the disease. With no family history of FSH, the diagnosis came as a complete shock. As a parent, Marsha wanted to do everything possible to help her child and joined the FSHD Society to find support and learn more about the condition.

  Through the FSHD Society, Marsha found a caring community of people who offered both information and emotional support. Now, as the Director of the St. Louis Chapter, Marsha is grateful for the chance to give back to this community that has been so helpful and supportive throughout her journey.

  Contact Marsha directly or visit the St. Louis Facebook page.