Virginia Chapter

连接。支持。信息。加强。.

Welcome to the Virginia Chapter

The Virginia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

我们为您提供支持、共享当地资源,并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症,还是已经与前列腺增生症共同生活了多年,我们都将为您提供支持,帮助您走好人生的每一步。.

加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.

认识我们的团队

  • Mollie Garrett

    Mollie Garrett

    Mollie Garrett, diagnosed with FSHD in February 2024, joined the FSHD Society immediately and began attending monthly online meetings. In April 2024, she attended a patient education day and met others with FSHD, which led to her involvement in Capitol Hill Day in May 2024.

    Through the FSHD Society, Mollie has gained hope and a supportive community. As Co-Director of the FSHD Society Virginia Chapter, she is passionate about helping others live their best lives and looks forward to welcoming new members to the community.

    Contact Gary & Mollie directly or visit the Virginia Facebook page.

  • Gary Lauck

    Gary Lauck

    Gary Lauck was diagnosed with FSHD1 in November 2018. Soon after, he joined the ReSOLVE study at Virginia Commonwealth University, where he worked with the dedicated research staff and learned more about the disease. Determined to be part of the solution, Gary helped start the Virginia chapter of the FSHD Society, aiming to grow the community and support others affected by FSHD.

    Originally from a small town in West Virginia, Gary retired from the Navy in 2018 after nearly 30 years as a helicopter pilot. He now lives in Virginia Beach with his wife and two children.

    Contact Gary & Mollie directly or visit the Virginia Facebook page.

Volunteer with the Chapter

While Gary & Mollie are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

联系 Beth Johnston,志愿者领导力主管 了解如何发挥影响并参与其中。.

Upcoming Virginia Chapter Events

  • Virginia Chapter Meeting

    2026 Chapter Meetings
    Zoom 虚拟会议 ,United States

    Virtual via Zoom on July 28 6:00-7:00pm ET You’re invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This […]

  • Virginia Chapter Meeting

    2026 Chapter Meetings
    Zoom 虚拟会议 ,United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]

  • Virginia Chapter Meeting

    2026 Chapter Meetings
    Zoom 虚拟会议 ,United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]

  • Virginia Chapter Meeting

    2026 Chapter Meetings
    Zoom 虚拟会议 ,United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]

  • Virginia Chapter Meeting

    2026 Chapter Meetings
    Zoom 虚拟会议 ,United States

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]