Welcome to the Western PA Chapter
The Western Pennsylvania chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
我们为您提供支持、共享当地资源,并让您了解最新的研究和护理信息。无论您是刚被诊断出患有前列腺增生症,还是已经与前列腺增生症共同生活了多年,我们都将为您提供支持,帮助您走好人生的每一步。.
加入当地分会 了解我们如何在您的前列腺增生症之旅中为您提供支持。.
认识我们的团队
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Mark Christman
Mark and his wife, Renee, have been navigating the challenges of FSHD together for more than 30 years. From the beginning, when Renee’s parents objected to Mark’s proposal because they feared his disease, to raising three children while juggling careers, their deep commitment to one another has kept them strong through every challenge. Their bond has been the foundation of their journey with FSHD.
Diagnosed with FSHD as a teenager and using a power wheelchair for 20 years, Mark is committed to supporting others affected by the disease. A retired attorney from Pittsburgh, he vividly remembers the first time he met another person with FSHD at an FSHD Society meeting in 2014. That moment gave him hope and inspired him to start the Western Pennsylvania Chapter. Mark is dedicated to fostering a strong community and providing resources that help support individuals and families affected by FSHD.
Contact Mark directly or visit the Western Pennsylvania Facebook page.
Volunteer with the Chapter
While Mark is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
联系 Beth Johnston,志愿者领导力主管 了解如何发挥影响并参与其中。.