浏览项目标签 “Living with FSHD - FSHD Society”

With a Sense of Urgency

发布日期 11 月 14th, 201711/14/17

When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband […]

归档： 筹款与活动, 前列腺增生症患者的生活

标签 FSH 肌肉萎缩症, FSHD, 前列腺增生症患者的生活, 患者故事, 为治疗前列腺增生症而健步走和打滚

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Looking Back on a Year Full of Strength, Part 3 of 3

发布日期 12 月 26th, 201612/26/16

As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize […]

归档： 前列腺增生症协会新闻, 前列腺增生症患者的生活

标签 #S 分享您的胜利, FSH 肌肉萎缩症, FSH 协会, FSHD, 前列腺增生症患者的生活, 患者故事

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We Want You to #ShareYourVictory!

发布日期 10 月 26th, 201610/26/16

At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet […]

归档： 前列腺增生症患者的生活

标签 #S 分享您的胜利, 宣传, FSH 肌肉萎缩症, FSHD, 前列腺增生症患者的生活, 患者故事

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与前列腺增生症同舟共济--Ryan Levinson 的故事

发布日期 12 月 8, 201412/8/14

“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in […]

归档： 前列腺增生症患者的生活

标签 前列腺增生症患者的生活

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