世界面肩肱型肌营养不良症日！
发布日期 5 月 24th, 20235/24/23
Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our […]
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Join us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our […]
Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel – Convention Centre : 876-1055 Canada Place, Vancouver, […]
JUNE 20th is WORLD FSHD DAY! Help us raise public awareness of FSH muscular dystrophy by making a video selfie, urging everyone to take part in this year’s World FSHD Day awareness […]
本周，斯 Spencer Wyckoff 参加了 NBC 的《美国忍者勇士》（American Ninja Warrior）节目，旨在为 FSH 协会提高公众意识并筹集资金。在登上赛道之前，Spencer 和他的姐姐 Carden 讲述了他们家[…]
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