Basic Research - FSHD Society

What a New Study on FSHD and Mortality Means for Our Community

发布日期 5 月 18th, 20265/18/26

by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]

归档：前列腺增生症研究, 健康与医学, 前列腺增生症患者的生活

标签基础研究, Breathing Problems, Early Onset or Infatile, 基因检测, Heart Health, Lung Health, Research Motivation

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Organizations Join Forces to Map How Human Muscle Regenerates

发布日期 1 月 27th, 20261/27/26

Press release originally posted to the MDA website on Jan. 27, 2026 Organizations Join Forces to Map How Human Muscle Regenerates Muscular Dystrophy Association-led research collaboration with FSHD Society, LGMD2L […]

归档：前列腺增生症研究, 前列腺增生症协会新闻

标签 basic, 基础研究, 临床研究, 临床试验

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Scholar Rock Highlights 2026 Strategic Priorities

发布日期 1 月 13th, 20261/13/26

January 12, 2026, Originally posted to Business Wire Highlights: Apitegromab Biologics License Application (BLA) resubmission and U.S. launch, following FDA approval, are anticipated in 2026 for the treatment of children […]

归档：前列腺增生症研究

标签基础研究, 临床研究, 临床试验

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Art’s Call to Action

发布日期 1 月 11th, 20261/11/26

Nov. 26, 2025 Exciting news this week: Altay Therapeutics’ DX5057 has received Orphan Drug status from the U.S. FDA. DX5057 is currently the only oral DUX4 inhibitor in development for […]

归档：前列腺增生症患者的生活

标签宣传, 基础研究, 美好生活 FSHD, 临床研究, 临床试验

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