浏览项目标签 “social media - FSHD Society”

#FSHDselfies Shoot a Selfie, Raise Awareness  

发布日期 7 月 6th, 20147/6/14

selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national […]

归档： 前列腺增生症协会新闻

标签 宣传活动, social media

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Twitter blows up for Phil’s Jam

发布日期 2 月 27th, 20142/27/14

The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about […]

归档： 筹款与活动

标签 慈善音乐会, charities, FSH 肌肉萎缩症, FSHD, 筹款活动, social media

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