浏览项目标签 “Stories - FSHD Society”

Passing the Torch in the Bay Area: Thank You, Kent and Sue Drescher, and Welcome, Sam Feldman

发布日期 4 月 16th, 20264/16/26

The FSHD Society is deeply grateful to Kent and Sue Drescher for their years of dedicated service as leaders of the Bay Area Chapter. On Sunday, May 22, they officially […]

归档： 前列腺增生症协会新闻

标签 故事

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DIY 和耐力筹款活动势头强劲！

发布日期 8 月 21, 20258/21/25

by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society.  Kicking things off, Michael Ahlers […]

归档： 前列腺增生症协会新闻, 筹款与活动

标签 活动, 运动, 筹资, 社会支持, 体育, 故事

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患有前列腺增生症的人可能会感到绝望，但有一些切实可行的方法可以改变现状

发布日期 8 月 17, 20258/17/25

by Sam Feldman If you have FSHD (or are close with someone who does), you probably know that mix of frustration, fear, and “will anything ever actually help?” I’ve been […]

归档： 前列腺增生症患者的生活

标签 宣传, 药物开发, 社会支持, 故事, 行走和滚动

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More Laughter, More Love: Reflections on an inter-abled relationship

发布日期 8 月 12th, 20258/12/25

By Leah Lee Originally posted to the Muscular Dystrophy Coalition Facebook Group on July 26, 2025. Loving someone with FSHD means learning to live in constant motion. Everything is always […]

归档： 前列腺增生症患者的生活, 心理健康

标签 Adaptations, Care Partner, Families, Relationships, 社会支持, 故事

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