By: Feng Kok, Kayleigh Worek For most people living with Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic test is more than a lab result. It’s confirmation after years of unanswered questions, […]
By: Bill Sarraille, Wayne Winegarden, and Amanda Hill Living with facioscapulohumeral muscular dystrophy (FSHD) can affect nearly every part of daily life. A new study is the first to look […]
By Dan Wilson Like many of us with FSHD, lower extremity weakness is a daily part of life. Personally, I am in conflict about socializing and traveling outside of my […]
By Marisa Spain I can trace FSHD back at least five generations in my family and have always known that it would be a part of my life. Both my […]
by Chelsea Moeller Amanda was diagnosed while pregnant with her third of five children. A swollen leg with no obvious origin led to a neuromuscular specialist, who noticed the slightest […]
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