Observed on June 20, World FSHD Day is a global movement to raise awareness of Facioscapulohumeral Muscular Dystrophy (FSHD), one of the most common forms of muscular dystrophy. On this […]
The 2025 Walk & Roll season has ended, but we’ve included all our weekly updates (photos, videos, news coverage, stats, and more) below. A huge and heartfelt thank you all […]
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
by Chelsea Moeller, Development Director – FSHD Society Retiree Joanne Dalessandro has been busy – busier than she ever was during her 50-year career in sales. Between weekly medical appointments, […]
By Jess Wright The 2025 Walk & Roll to Cure FSHD season is right around the corner, and we’re already feeling the excitement build. Across the country, teams are forming, […]
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