On March 25, 2026, Sarepta shared the following letter to the FSHD Community: Dear Members of the FSHD Community, We are reaching out today for the first time to briefly […]
10 月份，前列腺增生症协会推出了 "前列腺增生症患者的精神生活"，这是一个新的 "聚会场所"，欢迎任何人探索信仰、灵性和意义感如何与前列腺增生症患者的生活相互交融 [...] 。
From diagnosis to Team USA, he keeps climbing By An Sasala, FSHD Society Johnny Quintana conquers challenges—and heights. A former football player and wrestler, Quintana regularly defies his doctor’s initial […]
Christine’s father was diagnosed with FSHD in his late 40s. Four years later he was reliant on a cane and, within ten years, a wheelchair. When Christine herself was diagnosed […]
by Chelsea Moeller, Development Director – FSHD Society Retiree Joanne Dalessandro has been busy – busier than she ever was during her 50-year career in sales. Between weekly medical appointments, […]
English English 
العربية
Español de México
Français du Canada
简体中文
