莱克西·帕帕斯（Lexi Pappas）的电影制作与FSH肌营养不良症的故事

Filmmaker Taylor Toole takes us inside the world of Lexi Pappas, a fellow documentarian who lives with a condition called facioscapulohumeral muscular dystrophy (FSHD). Last year, Lexi’s own documentary about her family’s four-generation journey with FSHD, went viral. Learn about the remarkable woman behind the camera.