This page contains all the ACF Modules so you can see them used, in action.
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Suspendisse id ligula eu libero varius efficitur. Mauris scelerisque diam ac massa vehicula, quis tincidunt sapien pharetra. Nulla facilisi. Aenean ultricies, eros ac venenatis posuere, odio odio feugiat sapien, nec interdum elit libero nec lectus. In hac habitasse platea dictumst. Donec tristique lectus ac justo fermentum, id pharetra arcu dictum. Etiam ullamcorper, lorem in pellentesque scelerisque, velit neque rhoncus justo, et molestie mi augue non metus. Fusce ac magna convallis, auctor urna eget, convallis felis.
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Est sed nisl lorem varius turpis iaculis. Dictum amet ultrices quam eu scelerisque pulvinar tristique in. Neque eget platea mauris.
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The FSHD Society’s vital work in supporting FSHD patients, families, researchers, and advocates is made possible through the generous contributions of corporate partners who are also dedicated to our mission.
If you would like to learn more about partnering with us, please contact us.
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CONNECT 2024 will be hosted on June 15-16 in Denver, Colorado. CONNECT brings together world leaders in FSHD research, patient care, advocacy, education, and support. Held every two years, FSHD […]
It’s our annual Thanksgiving Special and this year we’re featuring musicians living with FSHD. Tune in for interviews, instrumentals, and more.
8:30PM ET | 7:30PM CT | 6:30PM MT | 5:30PM PT Saturday, April 13, 2024, 6:30pm MT at the Boise State University Special Events Center Raise money to fund research […]
2024 International Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]
Sunday, August 18, 2024 2025 Falmouth Road Race The 2025 ASICS Falmouth Road Race promises to be an exciting event celebrating 53 years of running the iconic course along the […]
FSHD Europe will organize, in collaboration with the FSHD Society, the first FSHD Connect Europe meeting on June 13th – June 15th, 2025, in Amsterdam, The Netherlands. This is a […]
Save the date! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. With the recent advances in FSHD […]
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Ask the FSHD Navigators and get connected with a real person. We are here to journey alongside you and give you the resources you need to live your best life with FSHD!
请发送电子邮件至 Navigator@FSHDsociety.org请致电 (781) 301-6060或提交问题。
We want to help you connect with providers and resources who are informed about and experienced with FSHD.
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
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by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
College is possible. Preparation is necessary. by Wade C., FSHD Navigator Let’s start here: college is possible for students with FSHD. Yes, there might be some careers that aren’t realistic […]
May is National Mental Health Awareness Month, a time to recognize that well-being includes both physical and emotional health. For individuals living with FSHD, mental health can be an important […]
Living with FSHD often means learning to build a tool kit of strategies that support both body and mind. For many people, yoga, meditation, and breathwork can be meaningful additions […]
The FSHD Society is deeply grateful to Kent and Sue Drescher for their years of dedicated service as leaders of the Bay Area Chapter. On Sunday, May 22, they officially […]
The FSHD Industry Collaborative is a first-of-its-kind, multi-stakeholder initiative designed to improve how FSHD clinical trials are designed, executed, and evaluated RANDOLPH, Mass. and VANCOUVER, BC, April 8, 2026 /PRNewswire/ […]
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
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