Browsing “FSHD Society News - FSHD Society - Page 3”

A Powerful First: FSHD Connect Europe Brings Together Community Across Borders 

发布日期 7 月 10th, 20257/10/25

By Ria de Haas, FSHD Europe  FSHD Europe proudly hosted the first edition of FSHD Connect Europe, an event that marked a significant milestone for the European FSHD community. The […]

归档： 前列腺增生症研究, 前列腺增生症协会新闻

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Piloting a New Format for Chapter Meetings: What We Learned and What’s Next 

发布日期 7 月 9th, 20257/9/25

By Jenny Gast, Director of Chapter Programs  As the FSHD Society continues to grow, we’re reimagining how we connect our community across chapters. On June 25, we piloted a new […]

归档： 前列腺增生症协会新闻

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World FSHD Day 2025

发布日期 6 月 3rd, 20256/3/25

World FSHD Day, a global movement to raise awareness of FSHD, occurs on June 20. From orange slice selfies and proclamations to lit up buildings, World FSHD Day was a […]

归档： 前列腺增生症协会新闻, 筹款与活动

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Against All Odds: The Early Heroes of the FSHD Society

发布日期 5 月 26th, 20255/26/25

by Erin Saxon, FSHD Society A few months ago, I began an exciting project: capturing the stories of the early members of the FSHD Society. Since then, I’ve interviewed several […]

归档： 前列腺增生症历史, 前列腺增生症协会新闻

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This is how we win

发布日期 5 月 19th, 20255/19/25

Every move we make drives us toward our goal By June Kinoshita, FSHD Society There is so much going on at the FSHD Society that for someone observing from the […]

归档： 前列腺增生症协会新闻, 一般情况, 媒体与公关

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