浏览 “Early Onset or Infatile - FSHD Society”

What a New Study on FSHD and Mortality Means for Our Community

发布日期 5 月 18th, 20265/18/26

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Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion, FSHD Straight Talk

发布日期 3 月 30th, 20263/30/26

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Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study – Oct 2025 Parents’ Roundtable

发布日期 3 月 30th, 20263/30/26

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Whole Body MRI Measures in Pediatric FSHD Patients – November 2025 Parents’ Roundtable

发布日期 3 月 30th, 20263/30/26

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Pediatric FSHD – Euro-NMD Webinar Series, Episode 3

发布日期 6 月 18th, 20256/18/25

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