浏览项目标签 “patient stories - FSHD Society”

行走先锋领路！

发布日期 5 月 30, 20185/30/18

This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast.  These Volunteer Leaders […]

归档： 前列腺增生症协会新闻

标签 宣传活动, FSH, FSHD, 筹款, 筹资, 筹款活动, 患者故事, 为治疗前列腺增生症而健步走和打滚

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With a Sense of Urgency

发布日期 11 月 14th, 201711/14/17

When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband […]

归档： 筹款与活动, 前列腺增生症患者的生活

标签 FSH 肌肉萎缩症, FSHD, 前列腺增生症患者的生活, 患者故事, 为治疗前列腺增生症而健步走和打滚

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Looking Back on a Year Full of Strength, Part 3 of 3

发布日期 12 月 26th, 201612/26/16

As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize […]

归档： 前列腺增生症协会新闻, 前列腺增生症患者的生活

标签 #S 分享您的胜利, FSH 肌肉萎缩症, FSH 协会, FSHD, 前列腺增生症患者的生活, 患者故事

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Looking Back on A Year Full of Strength, Part 2

发布日期 12 月 19th, 201612/19/16

As we continue to look back on the incredible year we have had, we want to recognize others who have shared their inspirational stories, strength and commitment to continue to […]

归档： 前列腺增生症协会新闻, 前列腺增生症患者的生活

标签 #S 分享您的胜利, FSH, FSH 肌肉萎缩症, FSHD, 患者故事

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We Want You to #ShareYourVictory!

发布日期 10 月 26th, 201610/26/16

At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet […]

归档： 前列腺增生症患者的生活

标签 #S 分享您的胜利, 宣传, FSH 肌肉萎缩症, FSHD, 前列腺增生症患者的生活, 患者故事

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