It’s #GivingTuesday, and, since we know you and our FSHD community give to us all year long, we’re flipping the script and embracing GratefulTuesday instead! Thank you for trusting us with the important mission of caring for this community and for partnering with us to make progress.

Because of YOU, we are endlessly grateful – and hopeful, too.

It’s #GivingTuesday, and, since we know you and our FSHD community give to us all year long, we’re flipping the script and embracing GratefulTuesday instead! Thank you for trusting us with the important mission of caring for this community and for partnering with us to make progress.

Because of YOU, we are endlessly grateful – and hopeful, too.

It’s #GivingTuesday, and, since we know you and our FSHD community give to us all year long, we’re flipping the script and embracing GratefulTuesday instead! Thank you for trusting us with the important mission of caring for this community and for partnering with us to make progress.

Because of YOU, we are endlessly grateful – and hopeful, too.

It’s #GivingTuesday, and, since we know you and our FSHD community give to us all year long, we’re flipping the script and embracing GratefulTuesday instead! Thank you for trusting us with the important mission of caring for this community and for partnering with us to make progress.

Because of YOU, we are endlessly grateful – and hopeful, too.

Our goal for all impacted by FSHD is two-fold: 1) Speed the delivery of effective treatments and a cure and; 2) Ensure those impacted have what they need to live their best life.

The FSHD Society has played a key role in the advancement of FSHD therapies and provides support to our community worldwide. Together, we're poised to reach more milestones in 2024.

BetterLife FSHD is a pioneering research platform dedicated to empowering people living with Facioscapulohumeral Muscular Dystrophy (FSHD).

As FSHD research advances, and more therapies are being developed, it is more important than ever for patients to be actively involved in research, in their own care, and in advocacy. By joining BetterLife FSHD, your voice becomes part of a powerful story.

You're not just managing your FSHD: you're paving the way for a better future for everyone affected.

Have a question, but you’re not sure who to ask? Ask the FSHD Navigators and get connected with a real person. We are here to journey alongside you and give you the resources you need to live your best life with FSHD! Just email us at Navigator@FSHDsociety.org, call 781-301-6060 x4000, or submit a question.

FSHD Radio: Straight Talk releases episodes on the second and fourth Tuesday of every month. These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.

You can watch the show on YouTube @FSHDSociety or Facebook @FSHDSociety, or listen at your convenience wherever you like to stream your favorite podcasts.

FSHD Advocate is our feature-packed, thrice-a-year magazine. FSHD Advocate's purpose is to educate & empower our community to accelerate the developments of treatments. Each issue provides the latest research news, stories about our movers and shakers, practical tips for living with FSHD, resources on clinical trials, our Chapter Program, Walk & Roll events, and more. The FSHD Advocate is the voice of our community, connecting us all to work toward our common goal of treatments and a cure.