Remembering Dan Perez, co-founder of the FSHD Society and a driving force in FSHD research and advocacy.
The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
Empowering change through research, support, and relentless advocacy for FSHD families.
Advancing hope through groundbreaking FSHD research and innovative clinical trials worldwide.
Take control of your FSHD journey and help develop potential treatments faster.
Ask the FSHD Navigators and get connected with a real person. We are here to journey alongside you and give you the resources you need to live your best life with FSHD.
Just email us at Navigator@FSHDsociety.org, call (781) 301-6060, or submit a question.
FOCUS will unify clinical trial, natural history, and patient data By Dr. Lucienne Ronco, FSHD Society As part of the Global FSHD Innovation Hub, the FSHD Society has undertaken the […]
Connecting our community through the latest FSHD information on research, newsmakers, and breakthroughs.
Accelerating scientific discoveries and clinical advancements to develop treatments and a cure for FSHD.
Join us for engaging events that foster community, raise awareness, and support FSHD families and initiatives.
Accelerating research, providing support, envisioning a world without FSHD.
Our network supports the FSHD community with compassion and collaboration.
The Society has bold goals and we are making significant progress.
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