by Chelsea Moeller, Development Director – FSHD Society Retiree Joanne Dalessandro has been busy – busier than she ever was during her 50-year career in sales. Between weekly medical appointments, […]
By Jess Wright The 2025 Walk & Roll to Cure FSHD season is right around the corner, and we’re already feeling the excitement build. Across the country, teams are forming, […]
By Rick Whitehead This past June, I had the opportunity to attend the inaugural FSHD Connect Europe meeting. Here are my takeaways from the conference that I would like to […]
By Selina Lai, Pacific Northwest Chapter Director Our attendance at the Denver Patient Connect Conference last June inspired us to plan a summer trip to Europe to participate in the […]
World FSHD Day, a global movement to raise awareness of FSHD, occurs on June 20. From orange slice selfies and proclamations to lit up buildings, World FSHD Day was a […]
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