تُقدم جمعية الحثل الوجهي الكتفي العضدي (FSHD Society) دعمها لمجتمع الحثل الهيولي (التوتر العضلي) بعد الإعلان عن أن تجربة المرحلة الثالثة (HARBOR) التي أجرتها شركة نوفارتيس (Novartis) لعقار ديل-ديسيران (del-desiran) في علاج الحثل الهيولي لم تحقق هدفها الأساسي [...]
By: Feng Kok, Kayleigh Worek For most people living with Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic test is more than a lab result. It’s confirmation after years of unanswered questions, […]
By: Bill Sarraille, Wayne Winegarden, and Amanda Hill Living with facioscapulohumeral muscular dystrophy (FSHD) can affect nearly every part of daily life. A new study is the first to look […]
If you joined BetterLife FSHD and answered the FSHD Progression survey, it’s possible you wondered why we asked if you could do a bicep curl with your right arm while […]
Press release originally published to Business Wire on June 26, 2026. For additional information and analyses: Nature, Vol 655, July 2, 2026 Lei Lei Wu’s story for EndPoints News Pump […]
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