October 2026 Multi-Chapter Meetings Recap 3 times per year, we invite all of our Chapter members across the US and Canada together for 2 nights of learning and connection. We […]
Lucienne Ronco, PhD, FSHD Society The international FSHD advocacy drum is beating loudly with an important and consistent message, recently reinforced by FSHD Europe on behalf of national FSHD patient […]
VOLUNTEER SPOTLIGHT Meet Holly Duckworth—Leader, Colorado Walk & Roll to Cure FSHD Tell us about yourself—your interests, your passions, and your relationship to FSHD. I’m passionate about philanthropy, volunteering, and […]
Autonomy and Freedom of Movement in FSHD Ashley Ferreira and Don Burke On Thursday, November 5th at 1:00 pm ET, FSHD University welcomes Don Burke, Jeff Johnston, and Russell Lai […]
By Ashley Ferreira Is exercise safe with FSHD? How much is enough? And how do you build a routine you can stick with? In our recent FSHD University webinar, Forming […]
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