There are exciting new developments in FSHD genetic testing. A new genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing services. Other companies and groups are likely to follow suit. This is the first major innovation in FSHD genetic testing in nearly three decades… Read More »
Genetic testing for FSHD—a new frontier
Sole Searching
Finding shoes to fit your needs AND your personality by Beth Deloria, Allard (content sponsor) Did you know that shoes can be used to guess someone’s traits or characteristics? A 2012 study showed that 90 percent of a person’s personality is reflected in their choice of footwear. For those of us needing custom orthotics and… Read More »
A success for the virtual 2020 International Research Congress
by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA and the National Institutes of Health. The US capital (in an election year, no less!) would have provided an additional level of excitement to researchers… Read More »
Pandemics past and a diagnosis long delayed
by Bill Mirza, Palm Harbor, Florida I am an 86 year old white male, living with FSHD for the past 68 years. I wanted to share my life’s FSHD experiences with other individuals who may, I trust, find this brief history of my condition interesting. I was born and raised in Chicago; the youngest of… Read More »
A giant of FSHD research shares his “regrets”
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations from his four decades of seeing patients and directing ground-breaking research. Now retired from UMC St. Radboud in the Netherlands, Dr. Padberg was invited to… Read More »
Staying Active While at Home
In this recorded webinar, Julie Hershberg, PT, DPT, NCS, presents evidence-based benefits or physical therapy and exercise for patients with facioscapulohumeral muscular dystrophy (FSHD). Dr. Hershberg is a neurologic physical therapist, founder and owner of re+active physical therapy & wellness and adjunct instructor of clinical physical therapy at the University of Southern California. Current… Read More »