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News

Home / Blog
Project Mercury Inaugural Meeting

Unleashing the Power of Collaboration: Achieving More for FSHD Together

May 25, 2023 Pinned Post Leave a Comment

by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website.  On 11 May in Leiden, NL, the Project Mercury global task force members met for… Read More »

Filed Under: FSHD Research, FSHD Society News, General

Managing Fatigue

May 22, 2023 Pinned Post Leave a Comment

Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »

Filed Under: General, Health and Medicine, Living with FSHD, Mental Health

Raising our voice to raise our seats!

May 18, 2023 Pinned Post Leave a Comment

Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »

Filed Under: General, Health and Medicine, Living with FSHD

An Unforgettable Experience at Leicester City’s Disability Matters Matchday

May 5, 2023 Pinned Post Leave a Comment

The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They… Read More »

Filed Under: General, Living with FSHD

gentle workout for muscles

New frontiers in muscle regeneration for FSHD

April 27, 2023 Pinned Post 1 Comment

Once seen as a long shot, now more companies are looking at strategies to regrow muscles by Jamshid Arjomand, PhD, Chief Science Officer Over the past few years, there has… Read More »

Filed Under: General

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