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News

Home / Blog
Avidity Biosciences Announcement

FDA Fast Track Designation for Avidity’s FSHD therapeutic

January 20, 2023 Pinned Post Leave a Comment

Avidity Biosciences Granted FDA Fast Track Designation for AOC 1020 for the Treatment of Facioscapulohumeral Muscular Dystrophy SAN DIEGO, Jan. 18, 2023 /PRNewswire/ — Avidity Biosciences, Inc. (Nasdaq: RNA), a biopharmaceutical company committed… Read More »

Filed Under: FSHD Research

(Cautious) optimism in FSHD drug development

January 16, 2023 Pinned Post Leave a Comment

Patients are critical in helping to transform optimism into reality by Ken Kahtava, Chief Business Officer, FSHD Society Breakthroughs in FSHD research have identified the primary mechanism that causes FSHD…. Read More »

Filed Under: FSHD Research

Three women dressed warmly

Stay warm and safe

January 4, 2023 Pinned Post Leave a Comment

Our monthly Wellness Hour invited Dr. Mark Tarnopolsky of McMaster University to discuss an issue that many with FSHD face in winter: feeling especially susceptible to cold temperatures. He explains… Read More »

Filed Under: General, Living with FSHD, Tips and Tricks

Teaching future doctors about FSHD

December 20, 2022 Pinned Post 3 Comments

If we want to control the narrative, we need to tell our stories by Brian Jude Loiacono  I was formally diagnosed with FSHD in January 2019.  At that time I… Read More »

Filed Under: Living with FSHD

Avidity Biosciences Announcement

Promising findings from Avidity’s myotonic dystrophy trial

January 6, 2023 Pinned Post Leave a Comment

A major breakthrough for the field of RNA therapeutics Avidity Biosciences announced today that its investigational treatment for myotonic dystrophy type 1 (DM1), called AOC 1001, can be delivered into… Read More »

Filed Under: FSHD Research

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