Our look is new. Our purpose is the same. Learn more about our brand evolution.
By June Kinoshita When I attended the Los Angeles Ghostly Gala last week, I met an extraordinary woman, Donna Russo, an actress and dancer with FSH muscular dystrophy. Donna told me […]
The Ghostly Gala, the first-ever fundraising gala in Los Angeles for the FSH Society, has scored another coup with the donation of a collection of stylish, exquisitely crafted leather accessories from […]
Report by Charis Himeda, PhD The FSH Society’s 2015 International Research Consortium and Research Planning Meetings, held in  Boston on October 5-6, 2015, brought together over 100 investigators, including leaders […]
We have good news and bad. Our Ghostly Gala celebrity host, Max Adler, just announced that he has been cast in the next Clint Eastwood movie. According to the Hollywood […]
Tuesday, October 20, 2015 Denver 7:00pm-9:00pm. A gathering to socialize, exchange knowledge and advocate for FSHD. This meeting will explore ideas for a fundraising event! More info here. Saturday, October […]
